Monday, July 21, 2008

Ups and downs

They have moved Timmy out of the "step down" unit (which was a level lower then the pediatric ICU) into the basic care unit.  So this is good progress.

On the other hand, it seems that every time we reach our goal of 45 ml per hour of formula, Timmy begins to vomit and then we turn the pump down and try again.  So it will take a while to come up with a feeding plan that works for us.

Please pray that we will be able to develop a plan that will allow us to go home.  Mama and Timmy are both struggling with some inevitable aspects of hospital life, but if we go home now we will need a good deal of support, as well as a way to keep Timster hydrated as we troubleshoot the formula issues.  We will then need to do the reflux surgery and put in the G-tube or J-tube as an outpatient procedure.  Right now we are not having success at getting on the inpatient surgery list so I would like to get us home as soon as we can reasonably do it.

Please also pray that the IV and the NG-tube (which has been specially placed to go just past his stomach to reduce the feeding issues) would stay put.

1 comment:

Anonymous said...

Praying for all that you mentioned, and for you guys in general! I am really looking forward to seeing you guys and holding and kissing and squeezing (in moderation!) Timmy when I get there! :)
Love the updates, thank you! :)