Shower Break

Lara here. Just stopping home for a quick shower. We’ve had a fabulous number of visitors today to give me some breaks so that I can do paperwork and other un-fun but necessary things. We’ve met lots of different doctors who asked lots of questions and got enough history to start to figure out what tests need to be done. Right now (4 PM) Timmy has a pH probe that is testing the acidity of 2 spots in his esophagus. That probe goes down his nose just like the NG tube did. He didn’t like it going down, but now that it’s down he’s doing just fine. I just got word that the X-Ray came back showing that the tube is in the right spot, so once he wakes up from his nap we will give him some apple juice and start to feed him “normally” so that we can see whether that produces reflux or not and how much.

That probe will be monitoring him until sometime early tomorrow afternoon, and we should have the results quickly after that. We also are hoping to do the upper GI test tomorrow to check his anatomy to make sure there are no surprises during the upcoming surgery. And somewhere in there I think there may be a swallowing test. Once we get the test results back, we will decide what type of surgery he needs and then we’ll see when we can get that scheduled.

In general Timmy is weaker these days than he was a month or so ago, but I notice a significant improvement when he is well fed and well hydrated and not having reflux issues. So already right now he is more smiley and doing quite a bit better than he was before we went in to the hospital. I am really looking forward to seeing what kind of a plan we can put together for getting the reflux and the feeding issues taken care of so that we can go home and play, play, play!